Comments for PHG Foundation Blog http://blog.phgfoundation.org Making science work for health Wed, 17 Mar 2010 19:58:49 +0000 http://wordpress.org/?v=2.6.2 Comment on Communication and common sense by philippa.brice http://blog.phgfoundation.org/2008/11/communication-and-common-sense/#comment-15 philippa.brice Mon, 08 Dec 2008 12:25:13 +0000 http://blog.phgfoundation.org/?p=39#comment-15 Whoops, sorry! Whoops, sorry!

]]> Comment on Communication and common sense by Simon Berry http://blog.phgfoundation.org/2008/11/communication-and-common-sense/#comment-13 Simon Berry Fri, 28 Nov 2008 19:16:09 +0000 http://blog.phgfoundation.org/?p=39#comment-13 Thanks so much for covering the ColaLife story. We need to keep the pressure on Coca-Cola and articles like this really help. If you liked the ColaLife animation you will love this real-life stuff filmed yesterday: http://www.colalife.org/2008/11/27/colalife-pods-what-the-frontline-thinks/ One thing though. My name is Simon Berry not David Barker :-) Simon Thanks so much for covering the ColaLife story. We need to keep the pressure on Coca-Cola and articles like this really help.

If you liked the ColaLife animation you will love this real-life stuff filmed yesterday:
http://www.colalife.org/2008/11/27/colalife-pods-what-the-frontline-thinks/

One thing though. My name is Simon Berry not David Barker :-)

Simon

]]> Comment on Safer testing for Down Syndrome? by philippa.brice http://blog.phgfoundation.org/2008/10/safer-testing-for-down-syndrome/#comment-12 philippa.brice Fri, 28 Nov 2008 13:19:56 +0000 http://blog.phgfoundation.org/?p=22#comment-12 Not this time, because the remit of our working group has been to look at the possible impact of alternative technologies on currently established NHS services. The Down Syndrome screening programme comes under the National Screening Committee, who are represented on the group. Patient advocates in this particular case refers to organisations such as Antenatal Results and Choices, who represent families who have a prenatal testing. At present the technology is only in experimental use for families at high risk of genetic diseases - but, of course, its potential use in screening for DS is of much wider interest. Whether screening for DS should be offered at all is a separate issue altogether, and not one under consideration in this context. But given that it IS available already, I think most people would prefer to have the option of a safer form of diagnostic testing, provided they are properly informed about it of course. How they choose to use the information it gives, if they opt for testing, would be down to them. Not this time, because the remit of our working group has been to look at the possible impact of alternative technologies on currently established NHS services. The Down Syndrome screening programme comes under the National Screening Committee, who are represented on the group. Patient advocates in this particular case refers to organisations such as Antenatal Results and Choices, who represent families who have a prenatal testing. At present the technology is only in experimental use for families at high risk of genetic diseases - but, of course, its potential use in screening for DS is of much wider interest. Whether screening for DS should be offered at all is a separate issue altogether, and not one under consideration in this context. But given that it IS available already, I think most people would prefer to have the option of a safer form of diagnostic testing, provided they are properly informed about it of course. How they choose to use the information it gives, if they opt for testing, would be down to them.

]]> Comment on Safer testing for Down Syndrome? by Frank Buckley http://blog.phgfoundation.org/2008/10/safer-testing-for-down-syndrome/#comment-10 Frank Buckley Thu, 27 Nov 2008 23:06:12 +0000 http://blog.phgfoundation.org/?p=22#comment-10 Interesting developments. Are people with Down syndrome included among your "patient advocates"? Interesting developments. Are people with Down syndrome included among your “patient advocates”?

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